Category Archives: Journal

Good News or bad News?


So, I heard on NPR the other night about a Doctor who is trying to use all the medical and health data available and mapping it with such things as proximity to pesticide, use and abuse of various drugs, proximity to various chemical plants and industries. He’s already beginning to see some very interesting patterns. As when a pharmaceutical company changes the composition of one of its drugs. This may correlate to significantly more or fewer deaths in areas with its use. By cross-referencing with other drugs and/or remedies the results may prove significant. Wonder how long he’ll last?

Another interesting medical tidbit came up when a doctor started looking into “spontaneous remission”, many thousand examples of which go uninvestigated. So, if a patient has gotten off the chemo and radiation and uses herbal supplements and dietary changes and changes of lifestyle and the cancer goes away, the medical profession doesn’t bother to look at it! Well, finally a doctor has! She’s finding many characteristics which seem to be at the core of many of these remissions. Again, an analysis of patterns.

As we develop and use these new technologies, and ways of collating data, we are beginning to see patterns that many of us suspected have been true for a long time. The ones mentioned above are directly involved with the medical field but, I suspect we’re going to see more and more of these patterns emerging. What I’m trying to do is to give us a way to look at these patterns in a different light. A more intuitive way to see our Universe.

Journal

Talk about up-and-down! Spent the last few days trying to get caught up on miscellaneous nonsense. On the upside, I finally got the accounting taken care of between the kids and me, I think. At least we’re making progress.

On the downside, I talked to Mike at PVA today. You know, the guy who told me 4 months ago that his organization’s request for my discharge papers wasn’t anything to worry about. I explained to him that I had gotten a letter from them saying they could not find any record of my DD-214. Great! So now my claim has been denied. So now I have to fill out some more paperwork to see if they can find that a paperwork! This is getting tiring.

We still haven’t gotten Adrian’s money and we still don’t know where to send the paperwork to correct the fact that the occupational therapist accidentally put down 53 inches instead of 48 inches for the size my wheelchair in the Paratransit application. Application denied! Does it ever end?

Did I mention I still don’t have an appointment with a neurologist? I haven’t talked to one in a year… Spinal cord injury… Go figure.

Journal


So here I am at 2 o’clock in the afternoon sitting in bed waiting to get transferred to the chair, to get back into bed 6 hours later. Such is my life!

I have a tendency to lean to the right side, in bed, as the day goes on. Much of it due to my own effort to keep my body moving and upright. I’m not doing much of any kind of exercise other than the things that accomplish what I’m trying to do i.e. get my thoughts out of my head and onto the machine. It’s been a rough fight. My hands are starting to lock into the shapes I use to tap a surface or a keyboard. And yet, in the year that I’ve been here. No one seems to be able to figure out that this is my motivation. Thank you, doctors, psychiatrists, psychologists, but, so far, I have serious reason to question your advice. Virtually nothing you have told me has come about, and you have not told me anything in terms of the prognosis. What gives?

We’re not waiting for technology, it’s already here! We are paying billions for this equipment!

Oh, you say there aren’t enough doctors. Maybe, they can make a lot more money working for the private hospitals because the VA is constantly being squeezed budget wise by Conservatives who consider this an entitlement. Kind of tripping on your own balls there fellas!

That being said, the individuals I have worked with in Syracuse and Buffalo VA’s have been great to work with, if sometimes overtaxed. Syracuse is a very new facility and needs to work out some major issues. I was about to say, “The whole system should be scrapped and reworked”, but what do I know about hospitals and treating thousands of vets. But it sure becomes obvious if a hospital is well run or not. And so far, of the ones I’ve been in, I’m not impressed

On a lighter note… shit, there is no lighter note!